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NEBRASKA CF FAMILIES

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OUR MISSION

We serve as a bridge between the CF clinic and CF families.  Through collaboration, we seek to provide practical resources to support local CF families and improve CF care. 

Until it's done.

WHAT WE OFFER

Family Portrait
Doctor Talking To Patient
Conference Event

SUPPORT

Local Family Outreach and Support

 We aim to welcome newly diagnosed or relocated families to join our community through organizing and facilitating opportunities to connect with and encourage one another.  The NE CF FAB is here to offer support and guidance to local CF families!

PARTNERSHIP

Collaboration with Local CF Clinicians and CFF Chapter

We believe that we are stronger together!  We work to maintain an open dialog with organizations that serve our local CF community. The wonderful care team at the Children's Nebraska CF Clinic and the and staff at the CFF Nebraska Chapter are some of the best around, working to make CF stand for Cure Found!

RESOURCES

Personalized Tools and Supplemental Educational Materials

We put our heads together to identify challenges faced by local CF families and then get to work creating supplemental resources and material personalized to our community. You will find many examples of this work on the Resources page of this site.

“Never doubt that a small group of thoughtful committed individuals can change the world; indeed, it's the only thing that ever has.”

Margaret Mead

Home: Contact

This Nebraska CF Families website and the NE CF Family Advisory Board are operated by local CF families with the guidance of the Omaha Children’s Hospital Cystic Fibrosis Center.  No advice or recommendations on this page should be taken above that of your CF Care Team.  Always check with your provider regarding any medical information and recommendations.  The advice and suggestions on this website are shared with the goal of helping local CF families feel connected and informed.

©2023 by NE Regional CF Center Family Advisory Board. Proudly created with Wix.com

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